12.10.2010

I guess I should have started with this,

but I had a duh moment.  What is fructose malabsorption?  Well, the description from Wikipedia is as follows:

"fructose malabsorption, formerly named "dietary fructose intolerance," is a digestive disorder in which absorption of fructose is impared by deficianet fructose carriers in the small intestines's enterocytes.  This results in an increased concentration of fructose in the entire instestine...

fructose malabsorption is not to be confused with heriditary fructose intolerance, a potentially fatal condition in which the liver enzymes that break up fructose are deficient....

you can get more detail here:  link 

This is what my daughter has.  She is 10 and it began when she was 8 and took nearly two years to diagnose her.  We are still trying to determine some other issues going on with her and she will be going to a few more specialists.  Anyways, the dietician explained it as such:  Glucose is her large mother ship.  She needs to eat things with more glucose that way it will carry the small amounts of fructose over into her blood stream and out of her gut.  If she eats things with more fructose than glucose then the fructose will sink her mother ship in her gut and it will ferment and cause SIBO (which she has had twice already).  This analogy is a good way to picture it and to help kids understand. 

The problem with this dietary restriction is that you have a lot of foods out there that she cannot have because of the levels of fructose.  Not only does she have to avoid High Fructose Corn Syrup (HFCS) she has to avoid all substitute sugars too.  Dried fruit a huge no no and many fruits are as well.  The body is left with minimal foods and with a horribly picky eater, it makes feeding her a trial.  I have to say again, as I have stated over and over in some posts, I hate her dietary restrictions.  It isn't fixable like an allergy would be - say with benadryl - it is a long process of healing her gut and then seeing if she can handle food again as we reintroduce things - but with her those reintroductions have not gone well. 

I wish there was an easier way to feed my daughter : /

No comments: